Resources
Access trusted information, educational tools, and support resources related to ocular (uveal) melanoma. Whether you are newly diagnosed, living with metastatic disease, caring for someone affected, or supporting patients professionally, this page connects you to reliable Canadian and international resources.
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We update this page regularly to reflect emerging research, clinical guidance, and community support opportunities.​
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Downloadable Resources - COMING SOON
For more information about ocular melanoma, please click on the following links to download-able documents we have created with the permission of CureOM, an initiative of Melanoma Research Foundation.
Thank you to the team at CureOM for their inspiration and support
Ocular Melanoma
Fact Sheet
Questions to Ask your Doctor: Primary OM
Questions to Ask your Doctor: Metastatic OM
Follow Up Care Questions
Caregiver
Questions
In 2020, Ocumel Canada surveyed Health Care Providers to assess the services currently provided by centres working in the ocular melanoma treatment landscape. In Spring 2021, and again in 2022, we conducted an ocular melanoma patient/caregiver survey to assess the patient experience as it is today, across Canada.
We are now working with multiple OM Patient Care Providers across the country to address gaps in the system and advocate for standardized care and improved access to treatment and clinical trials in Canada.
Video Resources
Watch recorded webinars, expert interviews, and educational sessions focused on ocular melanoma care, research, and survivorship.​
Ocumel Canada - Symposium
Ocumel Canada - Symposium
Advancing Care in Ocular Melanoma: Updates & Expert Insights (Post-ESMO/SMR Edition) | Day 1
Advancing Care in Ocular Melanoma: Updates & Expert Insights (Post-ESMO/SMR Edition) | Day 2
Ocular Melanoma Patient & Caregiver Symposium 2024 - Day 1
OM Patient & Caregiver Symposium - Day 2
OCULAR MELANOMA WEBINARS
2023 Behind the Lens of Ocular Melanoma:
Dr. Marcus Butler's Insights
November 27th, 2023
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Together, we shed light on the latest developments and advancements in the realm of ocular melanoma (OM). Ocular melanoma, a rare and challenging cancer, necessitates increased awareness, a supportive community, and improved treatment options for those affected. During this webinar, Dr. Marcus Butler provided updates on the current state of ocular melanoma research, highlighting breakthroughs and innovations that can significantly improve patient outcomes.
Discover Ocumel Canada's collaborative efforts with a global Medical Advisory Board and partner patient representation organizations, specifically tailored to benefit Canadians diagnosed with primary and/or metastatic OM.
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Ocular Melanoma: Innovative Treatments and Beyond
FEBRUARY 2019
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With Dr. Marcus Butler, Princess Margaret Cancer Centre, Toronto, Canada & Dr. Omid Hamid, The Angeles Clinic and Research Institute, Los Angeles, California
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This webinar provides an update on the landscape of metastatic ocular melanoma treatment in Canada and the United States. Dr. Hamid and Dr. Butler share their knowledge of current practices and care pathways, identifying the most pressing needs for patients. They also discuss new and emerging treatment options such as IMCgp100 (now named Tebentafusp), as well as clinical trials available to Canadian patients with ocular or uveal melanoma.
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Prognostic Testing and What It Means to Ocular Melanoma Patients
SEPTEMBER 2022
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With Katherina Alsina, PhD, Castle BioSciences and Dr. Marcus Butler, Medical Oncologist, Princess Margaret Cancer Centre
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This webinar helps patients understand the prognostic testing possibilities when diagnosed with Ocular Melanoma. It also discusses options for health care professionals for prognostic testing, what it can mean to patients and how it can affect treatment decisions.
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Listed above are a few sources of information and support you might find useful. These groups are not connected to Ocumel Canada. We are providing the links as useful sources of information but do not monitor content for accuracy and quality.
NOTE: The information on the Ocumel Canada website is not intended to replace the medical advice of a doctor or healthcare provider. While we make every effort to ensure that the information on our site is as current as possible, please note that information and statistics are subject to change as new research and studies are published.
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